Benji will be entering long term maintenance on Tuesday. I need to just let that sink in for a moment. Regardless of how he got here, Benji’s frontline treatment is over. No… Continue Reading Day 293
Day 293
on Tag: acute renal injury
on Day 287
on According to our night nurse, Benji “slept through the night.” That’s not quite accurate, but we definitely got more sleep than we have in many days. It was like a… Continue Reading Day 287
Day 284
on Benji’s little wet cough persisted in the night. He complied with my requests to inhale deeply and get his coughs out, and by the morning his chest sounded completely clear,… Continue Reading Day 284
Day 283
on “Mucosal desquamation.” That’s the name for what is happening inside Benjamin’s body due to Methotrexate-induced Stevens Johnson Syndrome. His lips, mouth, tongue, throat and belly are all sloughing internally and… Continue Reading Day 283
Day 281
on We had a very sleepy morning here on the seventh floor. We both slept well last night but woke up frequently. Our night nurse was less experienced than her colleagues,… Continue Reading Day 281
Day 277
on We slept well last night. For the first time in many days, Benji needed no oxygen or Tylenol during his sleeping hours. Sarah and I took this as a very… Continue Reading Day 277