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Category: Uncategorized

Day 698/70

Laura Gilkey on November 29, 2016November 30, 2016

It’s our first night in a new room up here on the seventh floor. Tomorrow will be the 30th day of this admission, when we are required to switch rooms,… Continue Reading Day 698/70

Categories: Uncategorized Tags: absolute lymphocyte count (ALC), absolute neutrophil count (ANC), acute lymphoblastic leukemia, anesthesia, apheresis, CAR-T, child life, immunotherapy, inotuzumab, platelets, relapse, transfusion11 Comments

Day 697/69

Laura Gilkey on November 28, 2016November 29, 2016

We both slept so soundly last night. I jumped up at shift change, hopeful, while Benji caught the last of his twelve hours. Benji’s labs showed a doubling of white… Continue Reading Day 697/69

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, CMMRD, immunotherapy, inotuzumab, PD-1, relapse, school, sleep13 Comments

Day 696/68

Laura Gilkey on November 27, 2016November 27, 2016

Benji slept a lot better last night. We both did. He woke up for the day and coughed for quite some time, but cleared his lungs and moved on. He… Continue Reading Day 696/68

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, clinical trials, CMMRD, family, immunotherapy, platelets, relapse, research, spleen, x-ray11 Comments

Day 695/67

Laura Gilkey on November 26, 2016

It was another night of little sleep. Benji and I stayed up late to watch the original Charlie and the Chocolate Factory (again), and then, for the second night in… Continue Reading Day 695/67

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, hair loss, platelets, relapse, spleen6 Comments

Day 694/66

Laura Gilkey on November 25, 2016November 25, 2016

We had a rough night up here on 7 South. Benjamin woke up many times coughing, and with each episode he cried in pain. He couldn’t pinpoint where the pain… Continue Reading Day 694/66

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, hair loss, neutropenia, platelets, relapse10 Comments

Day 693/65

Laura Gilkey on November 24, 2016November 25, 2016

Today was a very good day. I admit the holiday-ness of it all threatened my emotional stability more than once. But Benji felt better today than he has in many… Continue Reading Day 693/65

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusions, family, gratitude, marriage, platelets, relapse, research, siblings5 Comments

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