I am ending another long day with gratitude. There have been moments of exhaustion and moments of fear, but overwhelmingly, the things that could go well, did go well. On… Continue Reading Day 705/77
Day 705/77
on Tag: apheresis
on Day 704/76
on All of today’s procedures went very smoothly. Benjamin is safe and sound, resting comfortably in his bed on the seventh floor. Benjamin’s scheduled 4am transfusion bumped his platelets from 3,000… Continue Reading Day 704/76
Day 703/75
on “The waiting is the hardest part” is a phrase I’ve used in this space before, a phrase parents on the 7th floor utter frequently. It’s true, there is fear in… Continue Reading Day 703/75
Day 702/74
on Benjamin had another great day today. We deeply missed the other half of our foursome, but we enjoyed our hospital family, and soaked up a bit of Saturday sunshine in… Continue Reading Day 702/74
Day 701/73
on Look at the boy in front of you. Today I took this advice. This morning, when I heard the nurses come in for shift change, I didn’t jump up to… Continue Reading Day 701/73
Day 700/72
on This morning’s labs were frankly terrifying. Benji’s white cell count and neutrophil count doubled again, and his blasts went up to 73%. His absolute blast cell count is so high.… Continue Reading Day 700/72