Day 705/77

I am ending another long day with gratitude. There have been moments of exhaustion and moments of fear, but overwhelmingly, the things that could go well, did go well. On the eve of a brand new treatment for Benjamin, this is the wave we need to be riding. Benji spiked a small fever at midnight… Continue Reading Day 705/77

Day 704/76

All of today’s procedures went very smoothly. Benjamin is safe and sound, resting comfortably in his bed on the seventh floor. Benjamin’s scheduled 4am transfusion bumped his platelets from 3,000 to 18,000. It was the first success of the day. But his spleen pain worsened as the sun started to rise. He woke up to… Continue Reading Day 704/76

Day 703/75

“The waiting is the hardest part” is a phrase I’ve used in this space before, a phrase parents on the 7th floor utter frequently. It’s true, there is fear in the waiting, but this time I find myself scared to leave the relative comfort of its suspension. I’m as scared to board this train tomorrow… Continue Reading Day 703/75

Day 702/74

Benjamin had another great day today. We deeply missed the other half of our foursome, but we enjoyed our hospital family, and soaked up a bit of Saturday sunshine in the process. Michael and Banyan stayed in Sarasota today. Banyan woke up with swollen lymph nodes and a slight cough. No fever, no cold, but… Continue Reading Day 702/74

Day 701/73

Look at the boy in front of you.  Today I took this advice. This morning, when I heard the nurses come in for shift change, I didn’t jump up to see the numbers. I stayed in bed and snuggled up to my sleeping boy instead. By the time I read the lab report, Benji had… Continue Reading Day 701/73

Day 700/72

This morning’s labs were frankly terrifying. Benji’s white cell count and neutrophil count doubled again, and his blasts went up to 73%. His absolute blast cell count is so high. The leukemia is making it really difficult for his marrow to create healthy cells. His platelets disappeared again after yesterday’s transfusion. And his absolute lymphocyte… Continue Reading Day 700/72