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Tag: transfusion

Day 698/70

Laura Gilkey on November 29, 2016November 30, 2016

It’s our first night in a new room up here on the seventh floor. Tomorrow will be the 30th day of this admission, when we are required to switch rooms,… Continue Reading Day 698/70

Categories: Uncategorized Tags: absolute lymphocyte count (ALC), absolute neutrophil count (ANC), acute lymphoblastic leukemia, anesthesia, apheresis, CAR-T, child life, immunotherapy, inotuzumab, platelets, relapse, transfusion11 Comments

Day 690/62

Laura Gilkey on November 21, 2016November 22, 2016

Benji asked for pain medication last night. His side started hurting too badly to sleep. So for the first time in a week, he took a low dose of oral… Continue Reading Day 690/62

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, neutropenia, platelets, port, relapse, transfusion5 Comments

Day 689/61

Laura Gilkey on November 20, 2016

The sunrise was spectacular. Benji and I were awake, calmly lying in bed as our night nurse prepared to draw labs at 6am. I sleepily asked if she was going… Continue Reading Day 689/61

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, Neupogen, platelets, relapse, spleen, transfusion9 Comments

Day 688/60

Laura Gilkey on November 19, 2016

Benjamin didn’t sleep very well last night. His side was hurting intensely after yesterday’s platelet transfusion. I woke up before he did, when our day shift nurse came in to… Continue Reading Day 688/60

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, grandparents, platelets, relapse, siblings, spleen, transfusion7 Comments

Day 687/59

Laura Gilkey on November 18, 2016November 19, 2016

It was a very busy day up here on 7 South. I was pouring my first cup of coffee when the phone rang. It was the nurse navigator for the… Continue Reading Day 687/59

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, antibiotics, Blinatumomab, CAR-T, lymphocytes, platelets, relapse, transfusion, x-ray8 Comments

Day 683/55

Laura Gilkey on November 14, 2016November 15, 2016

When Benjamin is in pain, everything seems so much harder. His spleen continued to agonize him throughout the night. It woke him up and made his eyes wide with fear.… Continue Reading Day 683/55

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cyclophosphamide, etoposide, nausea, pain, platelets, relapse, spleen, transfusion, ultrasound10 Comments

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