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Tag: siblings

Day 630/2

Laura Gilkey on September 22, 2016September 23, 2016

Benjamin and I enjoyed a much more relaxing day today. He slept well; I did not, because a floating nurse from PICU kept trying to give Benjamin oxygen. I assured… Continue Reading Day 630/2

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, Erwinia, family, friends, hunger, lumbar punctures, relapse, siblings, steroids4 Comments

Day 626

Laura Gilkey on September 19, 2016

We are all settled in up here on the seventh floor. It was painful to leave our house this morning. Michael and I spent a lot of time just holding… Continue Reading Day 626

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, marriage, platelets, reinduction, relapse, siblings, transfusion8 Comments

Day 623

Laura Gilkey on September 15, 2016September 15, 2016

Sleep was elusive again last night. We are entering a new season of scans and waiting times and I couldn’t quiet my mind. This morning’s bridge walk with my dear… Continue Reading Day 623

Categories: Uncategorized Tags: acute lymphoblastic leukemia, genetics, MRI, school, septra, siblings1 Comment

Day 621

Laura Gilkey on September 13, 2016September 13, 2016

Last night it was Benji’s turn to have a nightmare. He woke up so scared, but wouldn’t tell me what he was dreaming about. He didn’t want to go back… Continue Reading Day 621

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, genetics, grandparents, lynch syndrome, marriage, PMS2, siblings1 Comment

Day 616

Laura Gilkey on September 8, 2016September 8, 2016

Sometimes people just wake up on the wrong side of the bed. Today, it was Benjamin. As with everything “off,” I wondered if it was cancer-related–or if it just was.… Continue Reading Day 616

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bMMRD, chemo delay, CMMRD, lynch syndrome, school, siblings2 Comments

Day 595

Laura Gilkey on August 18, 2016August 19, 2016

The boys both woke up in good moods. We were all together on a workday morning; a rare treat. We took them out for their favorite bagels before we headed… Continue Reading Day 595

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, constitutional mismatch repair deficiency, DNA, genetics, nausea, siblings5 Comments

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