Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: chemotherapy

Day 760/132

Laura Gilkey on January 30, 2017May 10, 2017

“Stand up straight and realize who you are, that you tower over your circumstances. You are a child of God. Stand up straight.” ~Maya Angelou These words saved me today.… Continue Reading Day 760/132

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, chemotherapy, clinical trial, fear, feeding tube, fever, hope, liver, lungs, pain, relapse, siblings, spleen, total parenteral nutrition90 Comments

Day 759/131

Laura Gilkey on January 29, 2017May 10, 2017

Rhythm. A word and an idea I’ve always loved. Tonight, our rhythms feel very off. I’m listening to Benjamin breathe through an oxygen mask while he sleeps. His breaths are… Continue Reading Day 759/131

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, cytarabine, family, heart, oxygen, platelets, pulse, relapse, siblings, transfusion16 Comments

Day 684/56

Laura Gilkey on November 16, 2016

Benji slept through the night and didn’t need any more morphine or hot baths. I had a great feeling about today. I jumped up at shift change, excited to see… Continue Reading Day 684/56

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, CHOP, platelets, port, relapse, school7 Comments

Day 644/16

Laura Gilkey on October 6, 2016October 7, 2016

I woke up early and tried to let Benji sleep as long as he could. When the day shift nurses started coming in, taking vitals, listening to his heart, getting… Continue Reading Day 644/16

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, chemotherapy, diarrhea, family, friends, platelets, relapse, school2 Comments

Day 404

Laura Gilkey on February 9, 2016February 10, 2016

Today was an oddly grounding day. I put my feet on the floor after turning off my alarm at 5:30am. I took a moment to get my bearings. I mentally… Continue Reading Day 404

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cafe-au-lait spots, chemotherapy, methotrexate toxicity, school, siblingsLeave a comment

Day 366

Laura Gilkey on January 3, 2016January 5, 2016

One year ago today, Benjamin began his treatment for Acute Lymphoblastic Leukemia. January 2, 2015 was “Day 1.” He had surgery to place his port and he received his first… Continue Reading Day 366

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotic, chemotherapy, detoxification, steroids4 Comments

Posts navigation

Older posts

Sidebar

Footer Content