This morning, I got a phone call from Dr. Oshrine. I’m grateful the kids were still asleep. The genetic testing we’d requested came back earlier than expected, and the results were positive. This is an extremely rare situation. We don’t understand the implications yet, but they are complex. It may mean that Benjamin is at… Continue Reading Day 594
Tag: cafe-au-lait spots
Day 404
Today was an oddly grounding day. I put my feet on the floor after turning off my alarm at 5:30am. I took a moment to get my bearings. I mentally recited an overview of the day’s goals, and of what in my world needed my attention. Somewhere within this silent morning narrative, as it does… Continue Reading Day 404
Day 401
It was a perfectly normal Saturday. We had a nice breakfast, watched Banyan dominate on defense at his flag football game, stocked the house with healthy groceries for the week, and enjoyed a fun relaxing afternoon with our family. Leukemia didn’t get in the way of life today. I finally posted in the online moms’… Continue Reading Day 401