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Tag: pain

Day 760/132

Laura Gilkey on January 30, 2017May 10, 2017

“Stand up straight and realize who you are, that you tower over your circumstances. You are a child of God. Stand up straight.” ~Maya Angelou These words saved me today.… Continue Reading Day 760/132

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, chemotherapy, clinical trial, fear, feeding tube, fever, hope, liver, lungs, pain, relapse, siblings, spleen, total parenteral nutrition90 Comments

Day 758/130

Laura Gilkey on January 28, 2017May 10, 2017

Everything seemed to take forever today. I don’t know how much of this is based in reality and how much stems from my own anxiety. Benjamin has received his three doses… Continue Reading Day 758/130

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cyclophosphamide, cytarabine, pain, PCA, relapse, vincristine11 Comments

Day 753/125

Laura Gilkey on January 23, 2017May 10, 2017

It was still dark this morning when Benjamin woke up wincing. He said he’d had a bad dream. I asked him to tell me about it, he said he forgot, and went… Continue Reading Day 753/125

Categories: Uncategorized Tags: acute lymphoblastic leukemia, colonoscopy, diarrhea, lumbar puncture, nausea, pain, polyps, port, relapse, spleen, stomach pain16 Comments

Day 752/124

Laura Gilkey on January 22, 2017May 10, 2017

and everything seems to have gone terribly wrong that can but one breath at a time is an acceptable plan she tells herself and the air is still there  ~ani… Continue Reading Day 752/124

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear, marinol, morphine, nausea, pain, relapse, spleen, stomach pain, x-ray9 Comments

Day 751/123

Laura Gilkey on January 21, 2017May 11, 2017

Benjamin feels better today than he did yesterday, and his labs continue to trend in the right direction. This is enough for today. Slow, steady healing. We were up several… Continue Reading Day 751/123

Categories: Uncategorized Tags: acute lymphoblastic leukemia, camp, family, nausea, pain, relapse, siblings, spleen9 Comments

Day 750/122

Laura Gilkey on January 20, 2017May 11, 2017

The goal for the day was to help Benjamin feel comfortable. I believe we are getting there. As the day comes to a close, I’m grateful that he feels better… Continue Reading Day 750/122

Categories: Uncategorized Tags: acute lymphoblastic leukemia, diarrhea, fentanyl, marinol, morphine, nausea, pain, relapse, spleen9 Comments

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