Day 277

We slept well last night. For the first time in many days, Benji needed no oxygen or Tylenol during his sleeping hours. Sarah and I took this as a very good sign. When Benji woke up and got out of bed for his morning bath, it was clear how much pain he is really in.… Continue Reading Day 277

Day 167

We slept in this morning. I stayed up late last night to be present when Benji’s methotrexate finished dripping and his blood was drawn. Jackie, one of our favorite night nurses, did all of this without waking Benjamin. It was such a relief to see nothing but clear, hydrating saline entering his body after she… Continue Reading Day 167

Day 164

The hospital bags are packed and waiting near the front door. The Scopolomine patch is placed securely behind Benjamin’s left ear. The children are sleeping soundly, ready for our trip over the bridge in the morning. And I am finding that my cheeks still hurt after a day that was full to the brim with… Continue Reading Day 164

Day 153

Yes, there are patterns here. On the third day of hospital admission, we sleep late. A desperate and deep sleep, easily interrupted and easily resumed. I woke before Benji and watched him sleep over the pages of my book. I learned during rounds this morning that last night’s nurse had given Benji a dose of… Continue Reading Day 153

Day 152

Today’s pattern mimicked the second day of Benjamin’s last hospital stay. He woke up and vomited twice within the first hour. I found myself grateful that we had family visiting last night, when his appetite was strong. I called our sweet nurse in to request a dose of Marinol, the last in Benjamin’s trifold arsenal… Continue Reading Day 152