on Benji and I didn’t get much sleep last night. He had a platelet transfusion after midnight. Toward the end of it, he said he was feeling like he was getting mouth sores, and his throat felt funny. I called the nurse immediately. She brought her charge nurse with her. They turned on the lights and… Continue Reading Day 682/54
on All morning and all afternoon, I was reveling in how fortunate we are. We woke up early and were on the water before most of the boat traffic. Michael and Benji fished all morning, and I paddled my farthest distance yet. I saw dolphin, manatee, stingray, horseshoe crab, osprey, heron, so many fish. We broke… Continue Reading Day 577
on I’ve decided to step away from my online moms’ group for a little while. This has happened before. It ebbs and flows. I love those women fiercely, but the sudden passing of the little girl who shares Benjamin’s diagnosis has sparked so much fear. People are discussing relapse more frequently. Asking and sharing when it… Continue Reading Day 497
on For the second year in a row, Michael’s mama is treating us to a few nights at the beach to kick off the boys’ Spring Break. This time we’re able to venture a little farther from home, to beautiful Captiva. I feel so grateful. We really need this time in the presence of saltwater and… Continue Reading Day 434
on The hospital bags are packed and waiting near the front door. The Scopolomine patch is placed securely behind Benjamin’s left ear. The children are sleeping soundly, ready for our trip over the bridge in the morning. And I am finding that my cheeks still hurt after a day that was full to the brim with… Continue Reading Day 164
on I was awake well into the wee hours last night. The Opinion pages editor from our local newspaper invited me to write a guest column about Benjamin’s diagnosis, and the galvanization of our community surrounding his healing. Prior to his remission, I wasn’t ready to do this. But with the big lemonade stand coming up Sunday,… Continue Reading Day 160