on A perfect Sunday, full of ritual, health, strength and love. I took the boys to the gym this morning for an orientation on the workout and weight machines with a personal trainer. Now, as long as Michael and I are with them, they are allowed to work out right alongside us. We are all excited about… Continue Reading Day 374
on We slept well last night. For the first time in many days, Benji needed no oxygen or Tylenol during his sleeping hours. Sarah and I took this as a very good sign. When Benji woke up and got out of bed for his morning bath, it was clear how much pain he is really in.… Continue Reading Day 277
on The morning was so uplifting. The afternoon was so dizzying. Now, as I settle in for another night up here on the seventh floor, I am going inward. I am trying to regroup. We have work to do. We slept well last night, and woke up to happy news. Benji’s Methotrexate levels decreased from 0.22… Continue Reading Day 276
on In my notes last night I wrote, “2:17am, bath 6, so tired.” That’s all. Last night was the third in a row of bath after bath and unsuccessful attempts to fall asleep. Finally Benji acquiesced to pain medicine after 3am. We both got almost four hours of sweet, uninterrupted sleep. Benji’s 6am blood labs, which… Continue Reading Day 269
on I’m grateful for a clean house and clean dogs. I’m grateful for the machines that are currently washing my dishes and my laundry. I’m grateful for old friends and delicious food. I’m grateful for normal summer sounds like sibling bickery and bouncing basketballs and Michael’s truck pulling into the driveway. I’m grateful for oncologists who are partners, and… Continue Reading Day 174
on Home is my happy place. I had a lovely time last night, but I woke up this morning excited to spend the evening at home with Michael and our boys. We usually head north to Michael’s grandmother’s house for Easter festivities. While I will certainly miss her, and our extended family, and the wisteria and… Continue Reading Day 93