I was up super late last night. I had to administer Leucovorin to Benji at 1:20am, 60 hours after his lumbar puncture. Once the hour passed midnight, I made the decision to… Continue Reading Day 470
Day 470
on Tag: leucovorin
on Day 469
on The newly increased dosage of steroids are in FULL effect, and Benji’s only taken five doses. I walked into the boys’ room this morning to wake them up after a… Continue Reading Day 469
Day 467
on Benjamin began his third cycle of long term maintenance today. He woke up calmly and contently. He did not complain when he couldn’t eat breakfast. He did not complain when I placed… Continue Reading Day 467
Day 414
on I was awake much later than I intended last night. I created a facebook page for the Rainbow Star project. Within minutes, I had four requests for stars. … Continue Reading Day 414
Day 385
on We are en route to chilly northern Alabama, and everyone is happy and relatively healthy. Benji and I took one more morning “off,” just to be sure; he still felt… Continue Reading Day 385
Day 384
on Benjamin stayed home from school today. He never reached fever status and I didn’t have to call the clinic, but he was still super congested and he just didn’t feel… Continue Reading Day 384