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Tag: hemoglobin

Day 767/139

Laura Gilkey on February 6, 2017May 10, 2017

Benjamin continues to do his brave work, and we continue to make the best decisions we can for him. This has always been true, of course, but we are accustomed… Continue Reading Day 767/139

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusions, death, hemoglobin, home, hospice, palliative care, platelets, relapse, steroids67 Comments

Day 686/58

Laura Gilkey on November 17, 2016

Benji slept for twelve hours last night. I could tell it would be a long rest when he fell asleep. He needed it. The round of chemotherapy Benji finished yesterday… Continue Reading Day 686/58

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, CMMRD, cyclophosphamide, etoposide, hemoglobin, Neupogen, platelets, relapse6 Comments

Day 648/20

Laura Gilkey on October 10, 2016October 11, 2016

I woke up to a nurse practitioner’s voice saying that Benji would need a red blood transfusion today. He was still sleeping, she was examining him. I opened my eyes… Continue Reading Day 648/20

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia shortage, hemoglobin, neuropathy, school, transfusion3 Comments

Day 287

Laura Gilkey on October 15, 2015

According to our night nurse, Benji “slept through the night.” That’s not quite accurate, but we definitely got more sleep than we have in many days. It was like a… Continue Reading Day 287

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, creatinine, hemoglobin, mucositis, nausea, platelets6 Comments

Day 48

Laura Gilkey on February 18, 2015February 18, 2015

Week 2 of Consolidation. 3 trips over the bridge down, 1 to go. Benjamin’s clinic visit today was relatively uneventful (as uneventful as an appointment to inject chemotherapy into your child’s body… Continue Reading Day 48

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cytarabine, hemoglobin, homeschool, hospital homebound7 Comments

Day 47

Laura Gilkey on February 17, 2015February 17, 2015

Tuesday mornings are bridge walking mornings. I was grateful for the sunrise, the early start, and the clarity it provided. I felt prepared for the day as Benjamin and I… Continue Reading Day 47

Categories: Uncategorized Tags: acute lymphoblastic leukemia, emotions, hemoglobin, lumbar puncture, propofol8 Comments

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