Day 769/141

Since Benjamin’s diagnosis, we have asked for guidance to make decisions for his highest good. Today we were guided in a direction we did not expect, but one that could not have been more clear. We are staying on the seventh floor. Last night, Benjamin had a high fever and rapid pulse, and he was… Continue Reading Day 769/141

Day 767/139

Benjamin continues to do his brave work, and we continue to make the best decisions we can for him. This has always been true, of course, but we are accustomed to being informed by evidence. Now we are being informed by instinct and love alone. I was woken in the middle of the night when… Continue Reading Day 767/139

Day 766/138

The sky at shift change was a thick, foggy red. This is is a strange and confusing time. I am trying to accept all phases of this slow and peaceful transition, but it is so hard to swallow. We all slept in as late as we could this morning. We woke up needing a quiet… Continue Reading Day 766/138