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Tag: friends

Day 731/103

Laura Gilkey on January 1, 2017May 13, 2017

Benjamin began this New Year with a strong and happy day. He got plenty of sleep last night. He only complained of tummy pain a couple of times, and mildly.… Continue Reading Day 731/103

Categories: Uncategorized Tags: acute lymphoblastic leukemia, appetite, c. diff, family, friends, relapse, transfusion9 Comments

Day 669/41

Laura Gilkey on October 31, 2016October 31, 2016

Michael woke us all up this morning to watch the sun rise over the Atlantic Ocean. I’m so thankful he did. I have tried for 669 days to put into… Continue Reading Day 669/41

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, family, friends, immunotherapy, relapse3 Comments

Day 660/32

Laura Gilkey on October 22, 2016October 23, 2016

Today was a good day. I don’t have expectations, but I have hope, and that is a much different and more beautiful animal. Benji and I slept in, Saturday style.… Continue Reading Day 660/32

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood pressure, family, friends, platelets, relapse, siblings3 Comments

Day 647/19

Laura Gilkey on October 9, 2016October 10, 2016

Benji woke up feeling happy. His daddy and brother were on their way to see him, and his body felt good. Our favorite nurse was back at morning shift change,… Continue Reading Day 647/19

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia shortage, friends, port, relapse, school, transfusion2 Comments

Day 644/16

Laura Gilkey on October 6, 2016October 7, 2016

I woke up early and tried to let Benji sleep as long as he could. When the day shift nurses started coming in, taking vitals, listening to his heart, getting… Continue Reading Day 644/16

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, chemotherapy, diarrhea, family, friends, platelets, relapse, school2 Comments

Day 630/2

Laura Gilkey on September 22, 2016September 23, 2016

Benjamin and I enjoyed a much more relaxing day today. He slept well; I did not, because a floating nurse from PICU kept trying to give Benjamin oxygen. I assured… Continue Reading Day 630/2

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, Erwinia, family, friends, hunger, lumbar punctures, relapse, siblings, steroids4 Comments

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