Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: CMMRD

Day 737/109

Laura Gilkey on January 7, 2017May 13, 2017

It sure was nice to make breakfast in my own kitchen this morning. Benjamin woke up feeling strong. He was hungry and ready for action. He was excited to eat, but… Continue Reading Day 737/109

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, CMMRD, home, PD-1, relapse, stomach pain10 Comments

Day 706/78

Laura Gilkey on December 7, 2016December 8, 2016

Benjamin has received his first dose of Inotuzumab. Its administration went smoothly, and he tolerated it well. We both slept as long as we could this morning. We tried to… Continue Reading Day 706/78

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, inotuzumab, platelets, relapse, transfusion15 Comments

Day 697/69

Laura Gilkey on November 28, 2016November 29, 2016

We both slept so soundly last night. I jumped up at shift change, hopeful, while Benji caught the last of his twelve hours. Benji’s labs showed a doubling of white… Continue Reading Day 697/69

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, CMMRD, immunotherapy, inotuzumab, PD-1, relapse, school, sleep13 Comments

Day 696/68

Laura Gilkey on November 27, 2016November 27, 2016

Benji slept a lot better last night. We both did. He woke up for the day and coughed for quite some time, but cleared his lungs and moved on. He… Continue Reading Day 696/68

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, clinical trials, CMMRD, family, immunotherapy, platelets, relapse, research, spleen, x-ray11 Comments

Day 686/58

Laura Gilkey on November 17, 2016

Benji slept for twelve hours last night. I could tell it would be a long rest when he fell asleep. He needed it. The round of chemotherapy Benji finished yesterday… Continue Reading Day 686/58

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, CMMRD, cyclophosphamide, etoposide, hemoglobin, Neupogen, platelets, relapse6 Comments

Day 678/50

Laura Gilkey on November 9, 2016

Benjamin slept well last night. I woke up at shift change and nervously looked at his lab report. It looks like yesterday’s blast number was indeed a product of his… Continue Reading Day 678/50

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, CMMRD, cryoprecipitate, fibrinogen, relapse3 Comments

Posts navigation

Older posts

Sidebar

Footer Content