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Tag: CAR-T

Day 734/106

Laura Gilkey on January 4, 2017May 13, 2017

We are still waiting for some critical information, but we also have some answers. A path is forming and it includes time at home. The biggest blessing that has come… Continue Reading Day 734/106

Categories: Uncategorized Tags: acute lymphoblastic leukemia, c. diff, CAR-T, clinical trial, hospital, nurses, platelets, relapse13 Comments

Day 728/100

Laura Gilkey on December 29, 2016December 30, 2016

We received the results of Benjamin’s bone marrow aspirate today. We don’t have the complete analysis, and a clear path has not yet been laid in front of us. But… Continue Reading Day 728/100

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, inotuzumab, neutropenia, platelets, relapse, stomach pain14 Comments

Day 716/88

Laura Gilkey on December 17, 2016

I didn’t want to look at this morning’s numbers. I tried so hard last night to focus on Benji’s slow and steadily declining leukemia blasts, but this morning I was… Continue Reading Day 716/88

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, CAR-T, family, inotuzumab, platelets, relapse, siblings12 Comments

Day 711/83

Laura Gilkey on December 12, 2016December 13, 2016

Hope is such a strange and morphing creature. This morning, the fog was so thick outside our window that it masked the world below. Nothing else was visible. With the… Continue Reading Day 711/83

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, CAR-T, inotuzumab, nurses, platelets, port, spleen10 Comments

Day 698/70

Laura Gilkey on November 29, 2016November 30, 2016

It’s our first night in a new room up here on the seventh floor. Tomorrow will be the 30th day of this admission, when we are required to switch rooms,… Continue Reading Day 698/70

Categories: Uncategorized Tags: absolute lymphocyte count (ALC), absolute neutrophil count (ANC), acute lymphoblastic leukemia, anesthesia, apheresis, CAR-T, child life, immunotherapy, inotuzumab, platelets, relapse, transfusion11 Comments

Day 697/69

Laura Gilkey on November 28, 2016November 29, 2016

We both slept so soundly last night. I jumped up at shift change, hopeful, while Benji caught the last of his twelve hours. Benji’s labs showed a doubling of white… Continue Reading Day 697/69

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, CMMRD, immunotherapy, inotuzumab, PD-1, relapse, school, sleep13 Comments

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