on Since Benjamin’s diagnosis, we have asked for guidance to make decisions for his highest good. Today we were guided in a direction we did not expect, but one that could not have been more clear. We are staying on the seventh floor. Last night, Benjamin had a high fever and rapid pulse, and he was… Continue Reading Day 769/141
on We are still waiting for some critical information, but we also have some answers. A path is forming and it includes time at home. The biggest blessing that has come from today is the knowledge that Benjamin’s cells have enough of the CD22 protein to pursue enrollment in a clinical trial. Now we just need… Continue Reading Day 734/106
on We’re watching fireworks over the Skyway from the seventh floor, just like we did on New Year’s Eve two years ago, after our world was turned upside down by Benjamin’s diagnosis. I am relieved to sit with this blank space in front of me. I have been on edge all evening and I need to… Continue Reading Day 730/102
on The house is quiet now. Everyone is sleeping soundly in our bed. This day went way, way too quickly. I’m thankful we were able to attend Banyan’s first football game of the season and watch him get a win. I’m thankful we were able to give Benjamin everything he wanted today, from grits and eggs at… Continue Reading Day 625
on I looked in my rearview mirror this morning as I was driving the boys to school, and saw an expression on Benjamin’s face that made me uncomfortable. He looked absent, far away. I asked him if he was alright, and he said he just wasn’t feeling well. He felt “off.” I walked him up to… Continue Reading Day 379
on I woke up feeling grateful. Tired, but grateful. I was glad to have the weight of The Letter off my chest, and glad to begin my day on the Ringling Bridge with my friend. With the boys safely at school and Michael at work, I began crossing items off of my long “cancer management” to-do… Continue Reading Day 376