Benjamin woke up early with a very sore tummy. Only the bath would make him feel better; he wanted no Kytril, no Zantac, nothing. I’m curious to see what his… Continue Reading Day 611
Tag: acute lymphoblastic leukemia
Day 610
Today marks the halfway point of Benjamin’s 1219 day treatment for Acute Lymphoblastic Leukemia. Halfway. The milestone underscored how important it is that I maintain a perspective of presence. I… Continue Reading Day 610
Day 609
Hurricane Hermine didn’t close down Sarasota County schools today. Benjamin was extremely short tempered this morning, set off by a breakfast mishap. It was clear that his steroids were affecting… Continue Reading Day 609
Day 608
Both boys were healthy and ready to go to school this morning. Mike was out the door before the sun rose. I, however, woke up with Benjamin’s cold. I got… Continue Reading Day 608
Day 607
We got home last night this morning at 3am. Benjamin went through the highly invasive emergency room protocol: port access, peripheral poking and blood draw, insanely sticky nodes on his… Continue Reading Day 607
Day 606
Benjamin’s fever remained low grade throughout the night. He slept well, but he was super tired this morning. So was Banyan. I think Banyan has successfully fought this virus, and was… Continue Reading Day 606