Benjamin had a great day today, despite plummeting numbers. His neutrophil count is just 40. That’s lower than it’s been in over a year; he has virtually no immune system.… Continue Reading Day 653/25
Day 653/25
on Tag: acute lymphoblastic leukemia
on Day 652/24
on We woke up to good news this morning. Those blasts that went off to pathology were indeed recovery blasts. There are still no leukemia blasts in Benjamin’s peripheral blood. We… Continue Reading Day 652/24
Day 651/23
on Benjamin slept in this morning. When he woke up he seemed a little down. Withdrawn. I sat with him and gave him space at the same time. I think he… Continue Reading Day 651/23
Day 650/22
on So much information to process, constantly. So many opportunities to wander down dangerous roads, mentally. The rewards are great when the mind is quiet and presence comes easy. Benjamin and… Continue Reading Day 650/22
Day 649/21
on Tonight is our 23rd night on the 7th floor. Our longest stay before Benjamin’s relapse was 22 nights. Maybe that’s why things have felt more emotional today. Maybe it’s the… Continue Reading Day 649/21
Day 648/20
on I woke up to a nurse practitioner’s voice saying that Benji would need a red blood transfusion today. He was still sleeping, she was examining him. I opened my eyes… Continue Reading Day 648/20