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Category: Uncategorized

Day 416

Laura Gilkey on February 21, 2016

Benjamin’s February steroid pulse has come to an end. Hallelujah. Every night this week, the medicine has reared its ugly head during the interminable, tear-filled wait between “please be seated” and… Continue Reading Day 416

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, mania, nutrition, siblings, steroidsLeave a comment

Day 415

Laura Gilkey on February 20, 2016February 20, 2016

It was an absolutely gorgeous Saturday morning for youth athletics. Benjamin’s baseball season officially gets underway next Saturday, but the team had a scrimmage today. Michael and I divided and… Continue Reading Day 415

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, alternative therapy, antibiotic, complementary therapy, language, mercaptopurine, prednisone, qi gong, septra, words1 Comment

Day 414

Laura Gilkey on February 19, 2016

I was awake much later than I intended last night. I created a facebook page for the Rainbow Star project. Within minutes, I had four requests for stars.    … Continue Reading Day 414

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, leucovorin, prednisone, rainbow stars, school, siblings, steroidsLeave a comment

Day 413

Laura Gilkey on February 18, 2016February 19, 2016

What a day. I feel like I’ve been hit by a truck. Which is ridiculous, in the grand scheme of things. Strap your boots on, Laura.  Banyan and I walked… Continue Reading Day 413

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, prednisone, school, siblings, steroids3 Comments

Day 412

Laura Gilkey on February 17, 2016

Benjamin didn’t go to school today. I honestly should have expected this, and just scheduled the day off. He crawled into our bed last night and there he wanted to stay… Continue Reading Day 412

Categories: Uncategorized Tags: acute lymphoblastic leukemia, lumbar puncture, school, siblings, steroids, vincristineLeave a comment

Day 411

Laura Gilkey on February 16, 2016

There was a lightning storm last night, and our power went out. As a result, our huge scaredy-dogs kept me awake much of the night, shaking at my side, needing… Continue Reading Day 411

Categories: Uncategorized Tags: acute lymphoblastic leukemia, anxiety, intrathecal chemotherapy, intrathecal methotrexte, lumbar puncture, nausea, prescriptions, propofol, rainbow stars, steroids, vincristine, zofran1 Comment

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