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Tag: stomach pain

Day 736/108

Laura Gilkey on January 6, 2017May 13, 2017

It was so good to be home today. Benjamin had a day of high highs and low lows. When he felt well, he was so happy. When he felt poorly,… Continue Reading Day 736/108

Categories: Uncategorized Tags: acute lymphoblastic leukemia, anger, blood, relapse, stomach pain9 Comments

Day 728/100

Laura Gilkey on December 29, 2016December 30, 2016

We received the results of Benjamin’s bone marrow aspirate today. We don’t have the complete analysis, and a clear path has not yet been laid in front of us. But… Continue Reading Day 728/100

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, inotuzumab, neutropenia, platelets, relapse, stomach pain14 Comments

Day 707/79

Laura Gilkey on December 8, 2016December 9, 2016

Last night was a rough one. Benjamin woke up several times during our short sleep, unable to find comfort. His spleen hurt worse than it has in weeks. At first… Continue Reading Day 707/79

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, kytril, marinol, morphine, nausea, relapse, stomach pain9 Comments

Day 657/29

Laura Gilkey on October 19, 2016October 20, 2016

Neither of us slept very well last night. Benjamin needed platelets to prepare him for today’s lumbar puncture, so our room filled with nurses at 3am, and at fifteen minute… Continue Reading Day 657/29

Categories: Uncategorized Tags: acute lymphoblastic leukemia, intrathecal methotrexate, lumbar puncture, platelets, propofol, stomach pain, transfusion2 Comments

Day 617

Laura Gilkey on September 9, 2016September 9, 2016

The boys have had a wonderful day. It’s Friday. They both knocked their tests out of the park. Kathy, Gana, and Uncle Bob brought them lunch to their schools. They… Continue Reading Day 617

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, family, genetics, school, stomach pain, therapyLeave a comment

Day 615

Laura Gilkey on September 7, 2016September 7, 2016

After we dropped Banyan off at the bus stop this morning, bagel in hand, Benji and I made a quick run for flowers. We stopped at the house to arrange… Continue Reading Day 615

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemo delay, Childhood Cancer Awareness Month, CMMRD, platelets, stomach pain1 Comment

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