on On the coldest morning of the year, by far, Benjamin begged his daddy to take him fishing. So that’s what they did. We layered him up nice and snug, I kissed them goodbye, and they were off. They picked up their bait and picked up Benji’s buddy and were out on the boat before most people… Continue Reading Day 738/110
on It was so good to be home today. Benjamin had a day of high highs and low lows. When he felt well, he was so happy. When he felt poorly, he was in tears. It’s so hard to see him hurting in any environment, but it still feels so out of place when it happens… Continue Reading Day 736/108
on Benji and I were out at South Lido bright and early to paddle through the mangrove tunnels and cast a few lines in the shallow water. First, we met with the team from One Blood for Benji’s photo shoot. He is going to be their “I Am One Blood” poster boy for September, which is… Continue Reading Day 569
on After I picked Benji up from school today, I took a call from One Blood, the blood donation service that supplies All Children’s Hospital with blood and platelets. They are looking for a child to feature in September for Childhood Cancer Awareness Month and they thought of Benji. I had the call on the car… Continue Reading Day 477
on We stayed in Sarasota today. I sent more photographs of Benji’s dressing to Tracey in the Infusion Center, and spoke to one of our favorite clinic nurses as well. They all felt that our lowest risk option was to stay home. I cleaned the area and added more tape. I monitored for fever. I felt like… Continue Reading Day 98