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Tag: spleen

Day 696/68

Laura Gilkey on November 27, 2016November 27, 2016

Benji slept a lot better last night. We both did. He woke up for the day and coughed for quite some time, but cleared his lungs and moved on. He… Continue Reading Day 696/68

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, clinical trials, CMMRD, family, immunotherapy, platelets, relapse, research, spleen, x-ray11 Comments

Day 695/67

Laura Gilkey on November 26, 2016

It was another night of little sleep. Benji and I stayed up late to watch the original Charlie and the Chocolate Factory (again), and then, for the second night in… Continue Reading Day 695/67

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, hair loss, platelets, relapse, spleen6 Comments

Day 692/64

Laura Gilkey on November 23, 2016

Benjamin woke up early this morning with a high fever and tummy pain. He vomited during shift change a few minutes later. It was a strange, dark, pungent liquid. There… Continue Reading Day 692/64

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Blinatumomab, CAR-T, clinical trial, nausea, platelets, relapse, spleen8 Comments

Day 689/61

Laura Gilkey on November 20, 2016

The sunrise was spectacular. Benji and I were awake, calmly lying in bed as our night nurse prepared to draw labs at 6am. I sleepily asked if she was going… Continue Reading Day 689/61

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, Neupogen, platelets, relapse, spleen, transfusion9 Comments

Day 688/60

Laura Gilkey on November 19, 2016

Benjamin didn’t sleep very well last night. His side was hurting intensely after yesterday’s platelet transfusion. I woke up before he did, when our day shift nurse came in to… Continue Reading Day 688/60

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, grandparents, platelets, relapse, siblings, spleen, transfusion7 Comments

Day 683/55

Laura Gilkey on November 14, 2016November 15, 2016

When Benjamin is in pain, everything seems so much harder. His spleen continued to agonize him throughout the night. It woke him up and made his eyes wide with fear.… Continue Reading Day 683/55

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cyclophosphamide, etoposide, nausea, pain, platelets, relapse, spleen, transfusion, ultrasound10 Comments

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