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Tag: siblings

Day 747/119

Laura Gilkey on January 17, 2017January 18, 2017

We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting,… Continue Reading Day 747/119

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, kytril, lumbar puncture, marriage, platelets, relapse, siblings, spleen17 Comments

Day 746/118

Laura Gilkey on January 16, 2017May 17, 2017

This has been our longest stretch away from the hospital since October. It’s been sweet, nourishing, comforting, and necessary. And I am so ready for it to end. Benjamin needs… Continue Reading Day 746/118

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, intrathecal methotrexate, kytril, lumbar puncture, morphine, nausea, pain, relapse, siblings13 Comments

Day 735/107

Laura Gilkey on January 5, 2017May 13, 2017

We are home. Everything feels pretty overwhelming right now. So many emotions today and so much uncertainty ahead. Home is the word and the feeling and the place I am… Continue Reading Day 735/107

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blinotumomab, CAR-T, home, inotuzumab, platelets, relapse, siblings, spleen11 Comments

Day 725/97

Laura Gilkey on December 26, 2016December 27, 2016

We’re settled back in here on 7 South. I was up early, packing bags and enjoying the quiet morning light through the windows of our beautiful house. When Benji woke… Continue Reading Day 725/97

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow aspirate, inotuzumab, nausea, relapse, siblings15 Comments

Day 723/95

Laura Gilkey on December 24, 2016

We. Are. Home. Until Monday morning, I will relish every sound and every smell and every breath in this house. The decision to come home was very much a last-minute one.… Continue Reading Day 723/95

Categories: Uncategorized Tags: acute lymphoblastic leukemia, christmas, family, home, nausea, relapse, siblings18 Comments

Day 721/93

Laura Gilkey on December 22, 2016December 23, 2016

Today was Benjamin Wilson Gilkey’s 9th birthday. There have been so many emotions flowing through this room today. I’m exhausted and I’m grateful. Next to me is a boy who… Continue Reading Day 721/93

Categories: Uncategorized Tags: acute lymphoblastic leukemia, birthdays, family, marinol, nausea, platelets, relapse, siblings, transfusion11 Comments

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