Benjamin is beginning his bravest work, and we have the honor of supporting him through it. Today was sweet and sad and slow and steady. Benjamin was surrounded by his… Continue Reading Day 763/135
Tag: siblings
Day 762/134
Energy can neither be created nor destroyed. ~First Law of Thermodynamics Benjamin, our brave, sparkly child, is dying. I realized today that I never actually believed this would happen. Not… Continue Reading Day 762/134
Day 761/133
We are settled into our new room on the fifth floor, the Pediatric Intensive Care Unit. It was scary to come here. But this is where we needed to be… Continue Reading Day 761/133
Day 760/132
“Stand up straight and realize who you are, that you tower over your circumstances. You are a child of God. Stand up straight.” ~Maya Angelou These words saved me today.… Continue Reading Day 760/132
Day 759/131
Rhythm. A word and an idea I’ve always loved. Tonight, our rhythms feel very off. I’m listening to Benjamin breathe through an oxygen mask while he sleeps. His breaths are… Continue Reading Day 759/131
Day 751/123
Benjamin feels better today than he did yesterday, and his labs continue to trend in the right direction. This is enough for today. Slow, steady healing. We were up several… Continue Reading Day 751/123