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Tag: relapse

Day 655/27

Laura Gilkey on October 17, 2016October 18, 2016

30 was the number of the day today. Benjamin’s absolute neutrophil count (ANC) dipped back down to 30. Not the direction we wanted it to go. This almost certainly means… Continue Reading Day 655/27

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Blinatumomab, immunotherapy, relapse2 Comments

Day 654/26

Laura Gilkey on October 16, 2016October 17, 2016

This Sunday began quietly. Benji slept in a little, and I enjoyed my morning coffee over some research. My moms’ group came through for me on the platelet desensitization question. It… Continue Reading Day 654/26

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, grandparents, nausea, platelets, port, relapse, siblings4 Comments

Day 653/25

Laura Gilkey on October 15, 2016

Benjamin had a great day today, despite plummeting numbers. His neutrophil count is just 40. That’s lower than it’s been in over a year; he has virtually no immune system.… Continue Reading Day 653/25

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, bone marrow transplant, broviac, immunotherapy, platelets, relapse, transfusion2 Comments

Day 652/24

Laura Gilkey on October 14, 2016

We woke up to good news this morning. Those blasts that went off to pathology were indeed recovery blasts. There are still no leukemia blasts in Benjamin’s peripheral blood. We… Continue Reading Day 652/24

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, grandparents, platelets, relapse3 Comments

Day 651/23

Laura Gilkey on October 13, 2016October 14, 2016

Benjamin slept in this morning. When he woke up he seemed a little down. Withdrawn. I sat with him and gave him space at the same time. I think he… Continue Reading Day 651/23

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, erwinaze, relapse3 Comments

Day 650/22

Laura Gilkey on October 12, 2016October 13, 2016

So much information to process, constantly. So many opportunities to wander down dangerous roads, mentally. The rewards are great when the mind is quiet and presence comes easy. Benjamin and… Continue Reading Day 650/22

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow transplant, colonoscopy, dasatanib, daunorubicin, dexrazoxane, erwinaze, polyps, relapse, vincristine3 Comments

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