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Tag: port

Day 690/62

Laura Gilkey on November 21, 2016November 22, 2016

Benji asked for pain medication last night. His side started hurting too badly to sleep. So for the first time in a week, he took a low dose of oral… Continue Reading Day 690/62

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, neutropenia, platelets, port, relapse, transfusion5 Comments

Day 684/56

Laura Gilkey on November 16, 2016

Benji slept through the night and didn’t need any more morphine or hot baths. I had a great feeling about today. I jumped up at shift change, excited to see… Continue Reading Day 684/56

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, CHOP, platelets, port, relapse, school7 Comments

Day 661/33

Laura Gilkey on October 23, 2016October 23, 2016

We didn’t get to go home today. We were richly blessed right here instead. Benji’s absolute neutrophil count (ANC) dipped down to 140. His blast number went up a little,… Continue Reading Day 661/33

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, family, gratitude, immunotherapy, kindness, port, relapse3 Comments

Day 656/28

Laura Gilkey on October 18, 2016October 19, 2016

Benjamin woke up in the middle of the night with low belly pain. I asked him to describe it as he was falling back to sleep, and he said, tearfully, “I… Continue Reading Day 656/28

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood donation, marriage, platelets, port, relapse, school, siblings4 Comments

Day 654/26

Laura Gilkey on October 16, 2016October 17, 2016

This Sunday began quietly. Benji slept in a little, and I enjoyed my morning coffee over some research. My moms’ group came through for me on the platelet desensitization question. It… Continue Reading Day 654/26

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, grandparents, nausea, platelets, port, relapse, siblings4 Comments

Day 647/19

Laura Gilkey on October 9, 2016October 10, 2016

Benji woke up feeling happy. His daddy and brother were on their way to see him, and his body felt good. Our favorite nurse was back at morning shift change,… Continue Reading Day 647/19

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia shortage, friends, port, relapse, school, transfusion2 Comments

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