We stayed in Sarasota today. I sent more photographs of Benji’s dressing to Tracey in the Infusion Center, and spoke to one of our favorite clinic nurses as well. They… Continue Reading Day 98
Day 98
on Tag: platelets
on Day 97
on I felt calmer, happier, and more positive this morning than I have in quite a while. Everything looked crisper and more clear. I made decisions easily. Patience came when I… Continue Reading Day 97
Day 95
on I know this photograph is blurry. I don’t care. It’s the only one Michael and I took of ourselves today, on our thirteenth wedding anniversary, standing with Benjamin as he… Continue Reading Day 95
Day 52
on Last night was a long one. Benjamin’s fever spiked again, his heart rate was too fast, and his oxygen was too low. I couldn’t keep my eyes off the monitors.… Continue Reading Day 52
Day 51
on We went to the emergency room this morning. Last night, Benjamin’s fever rose to 100.8. We thought we’d have to head north in the wee hours. We checked his temperature… Continue Reading Day 51
Day 15
on Benjamin is “a Friday guy.” This is the label that stuck with us early on, given to him by one of the nurses instructing us on our road map of… Continue Reading Day 15