Day 15

Benjamin is “a Friday guy.” This is the label that stuck with us early on, given to him by one of the nurses instructing us on our road map of treatment. Fridays are the days he’ll be getting chemotherapy throughout the Induction Phase. His first dose was on the 2nd of January. Today was his… Continue Reading Day 15

Day 12

Big day today–our first outpatient clinic appointment at All Children’s. I read that a kid with Acute Lymphoblastic Leukemia has an average of 58 outpatient visits. We are just fine with that. Each visit gets us closer to the words we need to hear. (Plus, baseball season is right around the corner. We’ll have to… Continue Reading Day 12

Day 3

Yesterday was a lesson in expectations. We learned they can be promptly chucked out the window when leukemia is involved. After a stellar morning, Benjamin started feeing pretty uncomfortable around 2pm. We encouraged quiet time, and he napped from about 2:30 to 4. When he woke up, his pain around his new Medi-port got worse… Continue Reading Day 3