Day 291

We are HOME. I don’t think this blessed event could have waited a single day longer. This morning’s blood draw was kind of the last straw for Benji. Our night nurse forgot to draw up his fresh saline flushes. We were both sleeping when she hooked his line up to the preservative-laden prefilled variety. He… Continue Reading Day 291

Day 256

I was filled with a sense of optimism today. We have overcome last week’s obstacle, and maybe it will be the final one during this phase. Maybe we are really on the homestretch of this frontline of treatment. My optimism was threatened several times, and still is, as I am going on hour four trying… Continue Reading Day 256

Day 243

September is Childhood Cancer Awareness Month. All over the internet today I saw people “Going Gold” to raise awareness to the fact that childhood cancers receive a combined four percent of research funding from the government’s National Cancer Institute. There are many organizations raising private funding for research, grants, support, etc. Since Benji is still in… Continue Reading Day 243

Day 242

It was bright and early when the four of us left the house this morning. Benjamin was hungry, but he couldn’t eat in case he made counts for today’s lumbar puncture. I abstained from breakfast in solidarity, and Michael and Banyan waited until they left the house to eat. Benji hoped he wouldn’t make counts.… Continue Reading Day 242

Day 241

Today is officially the last day of Delayed Intensification. Once again, I’ve learned that nothing in leukemia (or in life) is predictable. August was not nearly as rough as we’d been led to believe, but July wasn’t the walk in the park we thought it would be either. I am extremely proud and relieved to… Continue Reading Day 241

Day 239

I woke up thinking of Hudson, the little boy I wrote about yesterday. I thought of his mama, and her decision to fill her son’s days with happy adventures. I went through the motions of the morning, waking Benji up first for our early morning drive over the Skyway. When he asked for bagels from our favorite… Continue Reading Day 239