on I was filled with a sense of optimism today. We have overcome last week’s obstacle, and maybe it will be the final one during this phase. Maybe we are really on the homestretch of this frontline of treatment. My optimism was threatened several times, and still is, as I am going on hour four trying… Continue Reading Day 256
on What an amazing day. I am just filled with gratitude for the people who made it happen. There is something about walking onto a baseball field that makes me feel like an eight year old kid again. I wonder if the professionals still get that feeling. I hope so. Benjamin was made to feel very… Continue Reading Day 255
on Benji’s mysterious tummy trouble culminated today. At 4:30am he woke up with pain and nausea that persisted until we arrived at the clinic. With careful timing I was able to get his trifecta of Kytril, transdermal Scopolomine and Marinol into his system. Michael was working super early this morning. I was so thankful that with… Continue Reading Day 252
on Benji was up and dressed for school early this morning. He was in a good mood and ready to go. He made himself an omelette, and then his tummy hurt–which made me consider his enzyme levels again. He asked for Kytril on the way to school. I gave it to him, but I began to… Continue Reading Day 251