on Benji has received his last dose of Inotuzumab, at least for this cycle. The next step is a huge step, and I’m trying to stay present as it approaches. For now, we just need to get him feeling more comfortable, whether home is on the horizon or not. We were up before the sun again.… Continue Reading Day 720/92
on Happy birthday Mimi! Benji woke up with me at 5:30 to head northeast to my mother’s house. He was excited for the adventure and I was grateful for his company. Michael and Banyan came later so that Banyan could attend a back to school party he’d been looking forward to. We found a podcast on… Continue Reading Day 597
on I have to say, we do birthdays right around here. Balloons. Pancakes. A new bicycle. Adventure. Picnics. Surprises. Friends. Trampoline Park. Family. Low country boil. Presents galore. Froyo. And a twelve year old boy who is still awake, grinning from ear to ear playing a brand new video game. The day was so full and… Continue Reading Day 545
on Banyan’s birthday party has ended. Nine boys have made 24 hours worth of amazing memories. We are so grateful to Kathy for hosting this extravaganza yet again; it seems to get better every year. Benji coughed all through the night, and woke up feeling poorly for the third day in a row. I was anxious… Continue Reading Day 541
on We woke up early this morning, Michael and I grinning with a secret. We surprised the boys with a trip to Busch Gardens today for Benji’s eighth birthday. We didn’t tell them until the entrance sign was in view. Their smiles were enormous. We did it all; animal exhibits, carnival games, kettle corn. We got… Continue Reading Day 355