Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: grandparents

Day 688/60

Laura Gilkey on November 19, 2016

Benjamin didn’t sleep very well last night. His side was hurting intensely after yesterday’s platelet transfusion. I woke up before he did, when our day shift nurse came in to… Continue Reading Day 688/60

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, grandparents, platelets, relapse, siblings, spleen, transfusion7 Comments

Day 674/46

Laura Gilkey on November 5, 2016November 6, 2016

Today was lovely. Benjamin felt great and was wildly energetic as soon as he woke up. Out of isolation, he was off to the races to play with the nurses… Continue Reading Day 674/46

Categories: Uncategorized Tags: acute lymphoblastic leukemia, grandparents, lasix, relapse2 Comments

Day 654/26

Laura Gilkey on October 16, 2016October 17, 2016

This Sunday began quietly. Benji slept in a little, and I enjoyed my morning coffee over some research. My moms’ group came through for me on the platelet desensitization question. It… Continue Reading Day 654/26

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, grandparents, nausea, platelets, port, relapse, siblings4 Comments

Day 652/24

Laura Gilkey on October 14, 2016

We woke up to good news this morning. Those blasts that went off to pathology were indeed recovery blasts. There are still no leukemia blasts in Benjamin’s peripheral blood. We… Continue Reading Day 652/24

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, grandparents, platelets, relapse3 Comments

Day 621

Laura Gilkey on September 13, 2016September 13, 2016

Last night it was Benji’s turn to have a nightmare. He woke up so scared, but wouldn’t tell me what he was dreaming about. He didn’t want to go back… Continue Reading Day 621

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, genetics, grandparents, lynch syndrome, marriage, PMS2, siblings1 Comment

Day 597

Laura Gilkey on August 21, 2016August 21, 2016

Happy birthday Mimi! Benji woke up with me at 5:30 to head northeast to my mother’s house. He was excited for the adventure and I was grateful for his company.… Continue Reading Day 597

Categories: Uncategorized Tags: acute lymphoblastic leukemia, birthday, grandparents1 Comment

Posts navigation

Older posts

Sidebar

Footer Content