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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 299

Laura Gilkey on October 28, 2015October 28, 2015

Benjamin began long term maintenance today. (I notice I have a tendency to isolate this fact, like it needs verification. It is still sinking in.) It was a super early… Continue Reading Day 299

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, intrathecal chemotherapy, intrathecal methotrexate, leucovorin, long term maintenance, lumbar puncture, methotrexate toxicity, prednisone, vincristine1 Comment

Day 298

Laura Gilkey on October 26, 2015

I am being granted the opportunity to learn the same lessons over and over and over again. Like, two seemingly contradictory emotions (i.e. anger and gratitude) can and should be able to… Continue Reading Day 298

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, chemotherapy, intrathecal methotrexate, leucovorin, long term maintenance, lumbar puncture, methotrexate, prednisone, school, vincristine3 Comments

Day 297

Laura Gilkey on October 25, 2015

It was a month ago today that we went to the Emergency Room and Benji was later admitted to the hospital. It was a month ago that the endless rounds of testing… Continue Reading Day 297

Categories: Uncategorized Tags: acute lymphoblastic leukemia, anger, school3 Comments

Day 296

Laura Gilkey on October 24, 2015

Benji’s emotional highs and lows persist. There are so many parallels between this recovery period and his steroid weeks (perhaps I should give him potassium?). He’ll begin his first pulse… Continue Reading Day 296

Categories: Uncategorized Tags: acute lymphoblastic leukemia, maintenance, siblings, steroids3 Comments

Day 295

Laura Gilkey on October 23, 2015

Benji had a big, huge, whopping day today. He has improved immensely, to the point that I think he overdid it a little. He has melted into our bed. He… Continue Reading Day 295

Categories: Uncategorized Tags: acute lymphoblastic leukemia, school, siblings5 Comments

Day 294

Laura Gilkey on October 22, 2015October 22, 2015

Benji is feeling better every day, little by little. His body is still quite sore and he gets tired very easily. His belly is tender and hurts frequently. When hunger… Continue Reading Day 294

Categories: Uncategorized Tags: acute lymphoblastic leukemia, behavior, blood pressure, hunger, siblings6 Comments

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