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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 413

Laura Gilkey on February 18, 2016February 19, 2016

What a day. I feel like I’ve been hit by a truck. Which is ridiculous, in the grand scheme of things. Strap your boots on, Laura.  Banyan and I walked… Continue Reading Day 413

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, prednisone, school, siblings, steroids3 Comments

Day 412

Laura Gilkey on February 17, 2016

Benjamin didn’t go to school today. I honestly should have expected this, and just scheduled the day off. He crawled into our bed last night and there he wanted to stay… Continue Reading Day 412

Categories: Uncategorized Tags: acute lymphoblastic leukemia, lumbar puncture, school, siblings, steroids, vincristineLeave a comment

Day 411

Laura Gilkey on February 16, 2016

There was a lightning storm last night, and our power went out. As a result, our huge scaredy-dogs kept me awake much of the night, shaking at my side, needing… Continue Reading Day 411

Categories: Uncategorized Tags: acute lymphoblastic leukemia, anxiety, intrathecal chemotherapy, intrathecal methotrexte, lumbar puncture, nausea, prescriptions, propofol, rainbow stars, steroids, vincristine, zofran1 Comment

Day 410

Laura Gilkey on February 15, 2016

The boys had the day off from school today. Banyan slept in, while Benjamin woke up before the sun to join his daddy at his Monday breakfast meeting. He loves… Continue Reading Day 410

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, dexamethasone, intrathecal chemotherapy, intrathecal methotrexate, lumbar puncture, prednisone, steroids, vincristine2 Comments

Day 409

Laura Gilkey on February 14, 2016

I am proud of so many familial influences in my sons’ lives. From their multi-faceted family they are absorbing the ideals of lifelong learning, of fierce loyalty, of fun and… Continue Reading Day 409

Categories: Uncategorized Tags: acute lymphoblastic leukemia, familyLeave a comment

Day 408

Laura Gilkey on February 13, 2016

Saturday. Banyan made two killer catches and a ton of solid defensive plays in his flag football game this morning. It was a gorgeous day and he was full of… Continue Reading Day 408

Categories: Uncategorized Tags: acute lymphoblastic leukemia, oral chemotherapy, steroidsLeave a comment

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