Benjamin hasn’t complained of a sore throat all day. I feel pretty safe in saying we’ve dodged another virus. His steroid pulse also ended this morning. Hallelujah. I realized this morning that… Continue Reading Day 472
Day 472
on Tag: steroids
on Day 471
on Benji woke up with a sore throat. Day five of his steroid pulse and he hardly cared to eat breakfast. That’s unheard of. I thought this might preclude him from… Continue Reading Day 471
Day 470
on I was up super late last night. I had to administer Leucovorin to Benji at 1:20am, 60 hours after his lumbar puncture. Once the hour passed midnight, I made the decision to… Continue Reading Day 470
Day 468
on For the first time since long term maintenance began, Benjamin went to school on the day following a lumbar puncture. I had a feeling he would. He woke up easily and calmly… Continue Reading Day 468
Day 467
on Benjamin began his third cycle of long term maintenance today. He woke up calmly and contently. He did not complain when he couldn’t eat breakfast. He did not complain when I placed… Continue Reading Day 467
Day 449
on The boys had the day off from school today. It was a nice, relaxing Friday; we watched movies and packaged up rainbow stars in the morning. Banyan joined his friends… Continue Reading Day 449