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Tag: sleep

Nearing.

Laura Gilkey on March 1, 2017May 10, 2017

Things feel very intense right now, and I have a full and grateful heart. As I sit here for hours and hours sorting photographs I am struck with pride and thankfulness… Continue Reading Nearing.

Categories: Uncategorized Tags: death, grief, sleep26 Comments

Sleep.

Laura Gilkey on February 27, 2017May 10, 2017

Sleep is absolutely necessary. Sleep is completely elusive. How these two facts will reconcile is beyond me, but it’s time. I was awake again last night until after 5am. I tried… Continue Reading Sleep.

Categories: Uncategorized Tags: children, death, sleep26 Comments

Day 715/87

Laura Gilkey on December 16, 2016December 17, 2016

It’s 3:45am. Benjamin just vomited every bit of last night’s nourishment from his body. He has abdominal pain he can’t describe. I don’t know anymore if it’s a result of… Continue Reading Day 715/87

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, blood transfusion, inotuzumab, nausea, platelets, relapse, sleep, ultrasound13 Comments

Day 697/69

Laura Gilkey on November 28, 2016November 29, 2016

We both slept so soundly last night. I jumped up at shift change, hopeful, while Benji caught the last of his twelve hours. Benji’s labs showed a doubling of white… Continue Reading Day 697/69

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, CMMRD, immunotherapy, inotuzumab, PD-1, relapse, school, sleep13 Comments

Day 622

Laura Gilkey on September 14, 2016

I broke my own rule last night and stayed up way, way, way too late researching. My mind was in turbo mode after our Moffitt meeting. I thought it would be… Continue Reading Day 622

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemo delay, CMMRD, colonoscopy, endoscopy, insurance, MRI, sleep2 Comments

Day 509

Laura Gilkey on May 24, 2016

The sunrise over the bridge this morning seems like a very long time ago. It’s been a long, full day. Benjamin took his Methotrexate much later than I would have… Continue Reading Day 509

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, methotrexate, sleep1 Comment

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