on “Mucosal desquamation.” That’s the name for what is happening inside Benjamin’s body due to Methotrexate-induced Stevens Johnson Syndrome. His lips, mouth, tongue, throat and belly are all sloughing internally and… Continue Reading Day 283
on This roller coaster hasn’t come to a halt just yet. My intentions are being refocused tonight. I cannot grow complacent. It isn’t enough to just wait to be discharged. We… Continue Reading Day 282
on I couldn’t fall asleep last night. I was reviewing the events of the past ten days, and my anger was mounting. I thought about all of the tests and procedures… Continue Reading Day 278
on I’m not sure how to begin writing this. So many emotions wrapped up into one October Saturday. There have been many hard days, especially the most recent ones, but I… Continue Reading Day 275
on As Benji’s fever rose last night, so did his discomfort. He asked for baths with desperation in his eyes. I wanted to keep him in bed, keep his temperature constant… Continue Reading Day 274
on The mood in my car was light and joyful as we headed over the Skyway this morning. Benjamin and I were both excited that his dressing would be removed and… Continue Reading Day 99