Day 288

Benji took several more steps in the right direction today. His spirits were down when he woke; his lips were hurting, but mostly I think he was processing the idea of another day on the seventh floor. Fortunately, his funk was shortlived. He took a bath, then said he was hungry. I was happy to… Continue Reading Day 288

Day 283

“Mucosal desquamation.” That’s the name for what is happening inside Benjamin’s body due to Methotrexate-induced Stevens Johnson Syndrome. His lips, mouth, tongue, throat and belly are all sloughing internally and he is working hard to rid his body of its former lining. It’s making him very uncomfortable, but we are using his outer skin as… Continue Reading Day 283