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Tag: mucositis

Day 277

Laura Gilkey on October 5, 2015October 5, 2015

We slept well last night. For the first time in many days, Benji needed no oxygen or Tylenol during his sleeping hours. Sarah and I took this as a very… Continue Reading Day 277

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, bacteria, leucovorin, methotrexate, mucositis, rash, Stevens Johnson Syndrome7 Comments

Day 275

Laura Gilkey on October 4, 2015October 4, 2015

I’m not sure how to begin writing this. So many emotions wrapped up into one October Saturday. There have been many hard days, especially the most recent ones, but I… Continue Reading Day 275

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, escalating methotrexate, fever, methotrexate, mucositis, nausea, pain, platelets, rash8 Comments

Day 274

Laura Gilkey on October 2, 2015October 3, 2015

As Benji’s fever rose last night, so did his discomfort. He asked for baths with desperation in his eyes. I wanted to keep him in bed, keep his temperature constant… Continue Reading Day 274

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, antibiotics, creatinine, dilaudid, methotrexate, mucositis, PCA, platelets, rash8 Comments

Day 271

Laura Gilkey on September 29, 2015

Benji had a high fever all night long, and woke up often with pain and diarrhea. He took fewer baths and we got a bit more sleep than in nights… Continue Reading Day 271

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, acute renal injury, creatinine, fever, mucositis4 Comments

Day 127

Laura Gilkey on May 8, 2015May 8, 2015

Benjamin threw up again this morning, but I could tell it was purely a result of the saline flush. He drank water on his own through the night and was… Continue Reading Day 127

Categories: Uncategorized Tags: acute lymphoblastic leukemia, high dose methotrexate, leucovorin, mucositis, nausea5 Comments

Day 68

Laura Gilkey on March 10, 2015March 11, 2015

Sleep came easy and stayed late this morning. Benjamin had a tummy ache that came and went, but otherwise he felt strong, as usual. We dropped Banyan off at a… Continue Reading Day 68

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hospital homebound, mucositis4 Comments

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