Benjamin had a follow-up visit with cardiology today. It was an appointment I scheduled months ago, as part of our arrangement to check his suspected patent ductus arteriosus (PDA) annually,… Continue Reading Day 424
Day 424
on Tag: doxorubicin
on Day 207
on At 12:45am, I made toast with butter and honey for Benjamin, who woke up crying of hunger. At 6:45am, I made him tuna and egg salad sandwiches with mango on… Continue Reading Day 207
Day 206
on Benjamin has taken his last dose of Dexamethasone until long term maintenance. We won’t see the steroid again any sooner than November, and I will not be missing it. I… Continue Reading Day 206
Day 200
on Benjamin slept extremely well in his new bed. He was the last to rise in the house. We made breakfast, packed lunch, and headed to All Children’s. His attitude was… Continue Reading Day 200
Day 199
on From the time we woke up until _____ (we’re still going), we worked on Project Kids’ Room Renovation 2015. It has been such a productive day, and for the first… Continue Reading Day 199
Day 193
on Today was a challenging day. I am grateful once again for this space to sort it out. I had to work harder than usual to stay positive today, and I know that… Continue Reading Day 193