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Tag: blood transfusion

Day 765/137

Laura Gilkey on February 5, 2017May 10, 2017

The parallels between birth and death continue to make themselves obvious. Both processes have a natural ebb and flow. When there is a deep breath, it is followed by a… Continue Reading Day 765/137

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, death, family, pain, platelets, relapse, TPN64 Comments

Day 762/134

Laura Gilkey on February 1, 2017May 10, 2017

Energy can neither be created nor destroyed. ~First Law of Thermodynamics Benjamin, our brave, sparkly child, is dying. I realized today that I never actually believed this would happen. Not… Continue Reading Day 762/134

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, death, oxygen, pain, PICU, platelets, port, relapse, siblings199 Comments

Day 761/133

Laura Gilkey on January 31, 2017May 10, 2017

We are settled into our new room on the fifth floor, the Pediatric Intensive Care Unit. It was scary to come here. But this is where we needed to be… Continue Reading Day 761/133

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, fever, nurses, pain, PICU, platelets, siblings, steroids, x-ray61 Comments

Day 747/119

Laura Gilkey on January 17, 2017January 18, 2017

We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting,… Continue Reading Day 747/119

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, kytril, lumbar puncture, marriage, platelets, relapse, siblings, spleen17 Comments

Day 727/99

Laura Gilkey on December 28, 2016

We are still waiting for the results of Benjamin’s bone marrow aspirate, and that’s just fine with me. Despite my best efforts, any time there was a knock at our… Continue Reading Day 727/99

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, bone marrow aspirate, nausea, platelets, relapse15 Comments

Day 715/87

Laura Gilkey on December 16, 2016December 17, 2016

It’s 3:45am. Benjamin just vomited every bit of last night’s nourishment from his body. He has abdominal pain he can’t describe. I don’t know anymore if it’s a result of… Continue Reading Day 715/87

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, blood transfusion, inotuzumab, nausea, platelets, relapse, sleep, ultrasound13 Comments

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