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Category: Uncategorized

Day 278

Laura Gilkey on October 7, 2015October 7, 2015

I couldn’t fall asleep last night. I was reviewing the events of the past ten days, and my anger was mounting. I thought about all of the tests and procedures… Continue Reading Day 278

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, leucovorin, methotrexate, mucositis, platelets9 Comments

Day 277

Laura Gilkey on October 5, 2015October 5, 2015

We slept well last night. For the first time in many days, Benji needed no oxygen or Tylenol during his sleeping hours. Sarah and I took this as a very… Continue Reading Day 277

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, bacteria, leucovorin, methotrexate, mucositis, rash, Stevens Johnson Syndrome7 Comments

Day 276

Laura Gilkey on October 5, 2015October 5, 2015

The morning was so uplifting. The afternoon was so dizzying. Now, as I settle in for another night up here on the seventh floor, I am going inward. I am… Continue Reading Day 276

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, bacteria, methotrexate, neutropenia, port, siblings5 Comments

Day 275

Laura Gilkey on October 4, 2015October 4, 2015

I’m not sure how to begin writing this. So many emotions wrapped up into one October Saturday. There have been many hard days, especially the most recent ones, but I… Continue Reading Day 275

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, escalating methotrexate, fever, methotrexate, mucositis, nausea, pain, platelets, rash8 Comments

Day 274

Laura Gilkey on October 2, 2015October 3, 2015

As Benji’s fever rose last night, so did his discomfort. He asked for baths with desperation in his eyes. I wanted to keep him in bed, keep his temperature constant… Continue Reading Day 274

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, antibiotics, creatinine, dilaudid, methotrexate, mucositis, PCA, platelets, rash8 Comments

Day 273

Laura Gilkey on October 2, 2015October 2, 2015

It was another rough night and another trying day. I am trying to be grateful for the steps Benji has made toward healing, and appreciate the slow wisdom with which… Continue Reading Day 273

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, fever, immunoglobulin, IVIG, marinol, total parenteral nutrition10 Comments

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