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Category: Uncategorized

Day 752/124

Laura Gilkey on January 22, 2017May 10, 2017

and everything seems to have gone terribly wrong that can but one breath at a time is an acceptable plan she tells herself and the air is still thereĀ  ~ani… Continue Reading Day 752/124

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear, marinol, morphine, nausea, pain, relapse, spleen, stomach pain, x-ray9 Comments

Day 751/123

Laura Gilkey on January 21, 2017May 11, 2017

Benjamin feels better today than he did yesterday, and his labs continue to trend in the right direction. This is enough for today. Slow, steady healing. We were up several… Continue Reading Day 751/123

Categories: Uncategorized Tags: acute lymphoblastic leukemia, camp, family, nausea, pain, relapse, siblings, spleen9 Comments

Day 750/122

Laura Gilkey on January 20, 2017May 11, 2017

The goal for the day was to help Benjamin feel comfortable. I believe we are getting there. As the day comes to a close, I’m grateful that he feels better… Continue Reading Day 750/122

Categories: Uncategorized Tags: acute lymphoblastic leukemia, diarrhea, fentanyl, marinol, morphine, nausea, pain, relapse, spleen9 Comments

Day 749/121

Laura Gilkey on January 19, 2017May 11, 2017

Today was like one long roller coaster. My stomach hasn’t quite recovered. Things are quiet and peaceful now, and Benjamin is soundly sleeping. For that I am grateful. We woke… Continue Reading Day 749/121

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cerebral spinal fluid, intrathecal chemotherapy, lumbar punctures, methotrexate, morphine, pain, relapse, spleen17 Comments

Day 748/120

Laura Gilkey on January 18, 2017May 11, 2017

Benjamin and I woke up during the morning blood draw. It was still dark. Our nurse had to do a cap change on Benjamin’s IV line because he got transfusions… Continue Reading Day 748/120

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cyclophosphamide, etoposide, intrathecal methotrexate, lumbar puncture, nausea, pain, spleen14 Comments

Day 747/119

Laura Gilkey on January 17, 2017January 18, 2017

We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting,… Continue Reading Day 747/119

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, kytril, lumbar puncture, marriage, platelets, relapse, siblings, spleen17 Comments

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