Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog
DONATE NOW TO LIFE SAVING RESEARCH

Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 275

Laura Gilkey on October 4, 2015October 4, 2015

I’m not sure how to begin writing this. So many emotions wrapped up into one October Saturday. There have been many hard days, especially the most recent ones, but I… Continue Reading Day 275

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, escalating methotrexate, fever, methotrexate, mucositis, nausea, pain, platelets, rash8 Comments

Day 274

Laura Gilkey on October 2, 2015October 3, 2015

As Benji’s fever rose last night, so did his discomfort. He asked for baths with desperation in his eyes. I wanted to keep him in bed, keep his temperature constant… Continue Reading Day 274

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, antibiotics, creatinine, dilaudid, methotrexate, mucositis, PCA, platelets, rash8 Comments

Day 273

Laura Gilkey on October 2, 2015October 2, 2015

It was another rough night and another trying day. I am trying to be grateful for the steps Benji has made toward healing, and appreciate the slow wisdom with which… Continue Reading Day 273

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, fever, immunoglobulin, IVIG, marinol, total parenteral nutrition10 Comments

Day 272

Laura Gilkey on September 30, 2015October 1, 2015

Today has been an absolute roller coaster. There have been many questions, many more tests, and moments of unprecedented fear. We are learning. When the body fights to rid itself… Continue Reading Day 272

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, allergic reaction, creatinine, immunoglobulin, IVIG, methotrexate, virus4 Comments

Day 271

Laura Gilkey on September 29, 2015

Benji had a high fever all night long, and woke up often with pain and diarrhea. He took fewer baths and we got a bit more sleep than in nights… Continue Reading Day 271

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, acute renal injury, creatinine, fever, mucositis4 Comments

Day 270

Laura Gilkey on September 28, 2015

We are still waiting for answers to Benjamin’s mysterious pain and fever. But various possibilities are being ruled out right and left. We are in good hands, and many of… Continue Reading Day 270

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, kidneys, nausea, ultrasound5 Comments

Posts navigation

Older posts
Newer posts

Sidebar

Upcoming Events

There are no upcoming events.

Subscribe to our Email List

Subscribe

* indicates required

Search

Footer Content