Benji is sound asleep. I will wake him up when I finish writing so he can take his pills for the night. This happened last night as well; due to the debacle at… Continue Reading Day 303
Tag: steroids
Day 302
The boys had no school today. I was hoping that would mean sleeping in a little, but it was not to be. Because Benji’s body endured the Methotrexate toxicity, every lumbar… Continue Reading Day 302
Day 300
Benjamin wasn’t quite ready to return to school again this morning. Today, I think it was as much a case of nervousness as it was physical discomfort, though the amount of treatment he… Continue Reading Day 300
Day 296
Benji’s emotional highs and lows persist. There are so many parallels between this recovery period and his steroid weeks (perhaps I should give him potassium?). He’ll begin his first pulse… Continue Reading Day 296
Day 215
I couldn’t sleep again last night. One of the conversations I had with Dr. Grana yesterday was about a study linking a specific gene mutation to a higher incidence of… Continue Reading Day 215
Day 212
This weekend is a nice little sweet spot for Benjamin. He’s still quite hungry, but his mood swings have stabilized considerably. His cold is behind him. And although he has… Continue Reading Day 212