Benji felt totally fine today. Just once, as we were getting into the car to go to school, he said, “My tummy will feel better as the day goes on,… Continue Reading Day 476
Day 476
on Tag: siblings
on Day 471
on Benji woke up with a sore throat. Day five of his steroid pulse and he hardly cared to eat breakfast. That’s unheard of. I thought this might preclude him from… Continue Reading Day 471
Day 470
on I was up super late last night. I had to administer Leucovorin to Benji at 1:20am, 60 hours after his lumbar puncture. Once the hour passed midnight, I made the decision to… Continue Reading Day 470
Day 469
on The newly increased dosage of steroids are in FULL effect, and Benji’s only taken five doses. I walked into the boys’ room this morning to wake them up after a… Continue Reading Day 469
Day 468
on For the first time since long term maintenance began, Benjamin went to school on the day following a lumbar puncture. I had a feeling he would. He woke up easily and calmly… Continue Reading Day 468
Day 467
on Benjamin began his third cycle of long term maintenance today. He woke up calmly and contently. He did not complain when he couldn’t eat breakfast. He did not complain when I placed… Continue Reading Day 467