Benjamin’s reinduction phase is halfway complete. He took his last dose of Dexamethasone tonight. His allopurinol has been discontinued because his uric acid has stabilized, as has his phosphorous, sodium… Continue Reading Day 642/14
Day 642/14
on Tag: relapse
on Day 641/13
on Benjamin had another sleepy day. His counts continue to drop, and his ability to fight infection is waning. After he woke up, ate breakfast, and took his morning medicine, we… Continue Reading Day 641/13
Day 640/12
on Benjamin has had what his nurses described as an “eventful day.” This morning seems like ages ago. Once again I let Benjamin sleep as late as possible. When he woke… Continue Reading Day 640/12
Day 639/11
on Benjamin slept quite late this morning. I was relieved when he woke up, went to the bathroom, and balanced his input and output. He won’t need lasix tonight. He is… Continue Reading Day 639/11
Day 638/10
on Benjamin’s tiredness continued today. He slept until 10am. Our nurse was wonderful and flexible and let him sleep, holding his morning medicine an hour to accommodate. It sounds minor, but… Continue Reading Day 638/10
Day 637/9
on Today was much calmer than yesterday. Benjamin needed the slower pace. His spirits were high but his body was tired. We honored that, and had a restful, restorative day. Benjamin’s… Continue Reading Day 637/9