Benji’s lips hurt again last night, and he just couldn’t leave them alone. We didn’t get much sleep up here on the seventh floor. Sarah spent the night with us… Continue Reading Day 286
Day 286
on Tag: nausea
on Day 283
on “Mucosal desquamation.” That’s the name for what is happening inside Benjamin’s body due to Methotrexate-induced Stevens Johnson Syndrome. His lips, mouth, tongue, throat and belly are all sloughing internally and… Continue Reading Day 283
Day 282
on This roller coaster hasn’t come to a halt just yet. My intentions are being refocused tonight. I cannot grow complacent. It isn’t enough to just wait to be discharged. We… Continue Reading Day 282
Day 275
on I’m not sure how to begin writing this. So many emotions wrapped up into one October Saturday. There have been many hard days, especially the most recent ones, but I… Continue Reading Day 275
Day 270
on We are still waiting for answers to Benjamin’s mysterious pain and fever. But various possibilities are being ruled out right and left. We are in good hands, and many of… Continue Reading Day 270
Day 267
on Benji woke up again in the middle of the night. He was in and out of the bathtub, his tummy hurting badly, with desperation and exhaustion in his eyes. Finally… Continue Reading Day 267